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>> THE ANNUAL WALK TO WHEN
ALZHEIMER EVENT IS JUST THREE
WEEKS AWAY.
THIS YEAR'S PERHAIMPORTANT THAN.

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A RECENT REPORT SHODRAMATIC
INCREASE IN DEATHS FROM
ALZHEIMER'S AND DEMENTIA DURING
THE PANDEMIC.

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BOTH IN INDIANA AND NATIONWIDE.
BUSINESS OF HEALTH REPORTER
INSIDE INDIANA KYLIE VELETA HAS
MORE.

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>> IN 2020 ALONE THERE WERE 870
MORE DEATHS FROM ALL SUMMERS
DEMENTIA COMPARED TO THE
PREVIOUS FIVE YEARS.

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THAT'S A 14 PERCENT INCREASE.
MORE RESEARCH IS NEEDED TO
UNCOVER WHAT THE PANDEMIC HAD
SUCH A DEVASTATING EFFECT ON

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PEOPLE LIVING WITH ALZHEIMER'S.
THAT RESEARCH IS FUNDED BY
EVENTS LIKE THE ANNUAL WALK TO
END ALZHEIMER'S WHICH IS TAKING

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PLACE AGAIN THIS FALL IN
INDIANAPOLIS AFTER BEING ONLY A
VIRTUAL EVENT LAST YEAR.
NATALIE SUTTON IS EXECUTIVE

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DIRECTOR OF THE ALL SUMMERS
ASSOCIATION GREATER INDIANA
CHAPTER AND SHE JOINS ME NOW TO
TELL US MORE.

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HI, NATALIE THANKS FOR BEING ON
THE SHOW TODAY.
>> THANKS FOR HAVING ME.
>> WE MENTIONED IN THE

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INTRODUCTION A 14 PERCENT
INCREASE DURING THE PANDEMIC IN
2020.
IN ALZHEIMER'S DEATHS AND

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DEMENTIA DEATHS.
THAT HAS NOT BEEN FULLY FLUSHED
AND RESEARCH YET BUT CAN YOU
PLANE THE FACTORS OF A POSSIBLY

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LED TO THE INCREASE IN.
>> OF COURSE.
FIRST, THE POPULATION LIVING
WITH ALZHEIMER'S AND DEMENTIA

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WERE PARTICULARLY VULNERABLE TO
COVID-19.
THIS IS AN OLDER POPULATION,
SOMETIMES LIVING IN COMMUNAL

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SETTINGS.
OFTEN, ALSO HAVING OTHER
CHRONIC HEALTH CONDITIONS.
SOME OF THESE DEATHS THAT WERE

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ATTRIBUTED TO THE DEMENTIA MAY
ACTUALLY BE COVID-19 DESK WHEN
WE CONSIDER EARLY ON IN THE
PANDEMIC NOT HAVING ACCESS TO

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COVID-19 TESTING FOR THOSE
INDIVIDUALS.
THAT IS ONE POSSIBLE THEORY.
I THINK THE OTHER THING IS THAT

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THERE ARE PANDEMIC RELATED
CHANGES IN OUR LIVES THAT MAY
HAVE HAD A NEGATIVE IMPACT.
FIRST AND FOREMOST SOCIAL

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ISOLATION FOR THIS POPULATION,
BUT ALSO MAY BE A MORE LIMITED
ACCESS TO HEALTHCARE PROVIDERS
AND HEALTHCARE SERVICES.

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ALSO, CHANGES TO THE ROUTINE
AND CARE THAT MAY HAVE BEEN
PROVIDED BY OTHER FAMILY
MEMBERS OR OTHER KINDS OF

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CAREGIVERS THAT WERE UNABLE TO
TAKE PLACE DURING THE PANDEMIC.
>> MOST PEOPLE WITH ALZHEIMER'S
RELY ON WHAT'S CALLED AN

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INFORMAL CAREGIVER.
TYPICALLY A FAMILY MEMBER.
THE PANDEMIC HAS BEEN REALLY
CHALLENGING FOR THEM TOO.

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CAN YOU EXPLAIN SOME OF THE
CHALLENGES THAT CAREGIVERS ARE
FACING DURING 2020 AS WELL?
>> CAREGIVING IS NOT EASY IN

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NORMAL TIMES.
THE PANDEMIC HAS FURTHER
COLLOCATED THAT.
CAREGIVERS MAY HAVE DEALT WITH

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CHANGES IN THEIR ABILITY TO
CCESS DESPITE CARE OPTIONS
LIKE ADULT DAY SETTINGS DURING
THE SHUTDOWN.

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CAREGIVERS FOR THOSE WHO HAVE
LOVED ONES LIVING IN LONG-TERM
CARE SETTINGS WERE UNABLE TO
VISIT.

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SOMETIMES UNABLE TO COMMUNICATE
WITH THEIR LOVED ONE.
ALL OF THAT HAS LED TO SOME
REALLY NEGATIVE EFFECTS AND

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VERY EMOTIONAL TIMES FOR
ALZHEIMER AND DEMENTIA
CAREGIVERS.
>> LET'S TALK ABOUT THE WALK TO

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END ALZHEIMER.
YOU HAVE AN IN PERSON OPTION
THIS YEAR WHICH WAS ONLY
VIRTUAL LAST YEAR.

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OBVIOUSLY, IT'S ONE OF YOUR
BIGGEST FUNDRAISERS.
TALK ABOUT THE IMPORTANCE OF
THAT RESEARCH ESPECIALLY - I'M

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SORRY THE FUNDING AS IT RELATES
TO RESEARCH AND INDIANA.
>> THE FUNDS RAISED BY THE WALK
TO END ALZHEIMER WHICH IS OUR

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LARGEST FUNDRAISER ADVANCE THE
ASSOCIATION'S MISSION.
WE ARE FOCUSED ON USING THOSE
FUNDS TO PROVIDE CARE AND

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SUPPORT IN INDIANA COMMUNITIES
BUT ALSO TO ADVANCE RESEARCH AS
YOU MENTIONED.
WE ALL KNOW OUR ULTIMATE HOPE

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IS TO END ALZHEIMER'S AND OTHER
DEMENTIA.
THAT AND WILL COME TO RESEARCH.
WE ARE VERY FORTUNATE TO BE

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SITTING HERE IN INDIANA A
LEADER IN THAT RESEARCH.
WE ARE ACTUALLY AT THE
ALZHEIMER'S ASSOCIATION FUNDING

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11 ACTIVE GRANTS THAT TOTAL
ALMOST $3 MILLION TO INDIANA
RESEARCHERS.
THE WALK DEFINITELY SUPPORTS

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OUR ABILITY TO MAKE THOSE KINDS
OF GRANTS TO RESEARCH AND
IMPORTANT RESEARCH PROJECTS.
>> WE TALKED OFF CAMERA HOW THE

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WALK TOOK A FINANCIAL HIT LAST
YEAR, BEING THAT IT WAS ONLY
VIRTUAL.
THIS YEAR YOU HAVE A VIRTUAL

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OPTION BUT ALSO THIS IN PERSON
ABILITY THIS YEAR.
WHY IS IT SO MEANINGFUL TO HAVE
THAT IN PERSON OPTION TO GET

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BACK TOGETHER AGAIN?
>> WE JUST TALKED ABOUT THE
IMPORTANCE OF CAREGIVERS IN
ALZHEIMER AND DEMENTIA.

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HAVING A LOVED ONE ON THIS
JOURNEY OR BEING ON THIS
JOURNEY YOURSELF CAN FEEL VERY
LONELY.

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FOR US, THE WALK IS ALWAYS THAT
ONE DAY PER YEAR WHERE THE
COMMUNITY COMES TOGETHER.
I THINK PEOPLE FEEL HOPE, THEY

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FEEL LIKE THEY ARE PART OF A
COMMUNITY AND WE ARE SO EXCITED
WE ARE ABLE TO GIVE BACK.
OF COURSE WITH SOME SAFETY

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PROTOCOLS IN PLACE THIS YEAR.
>> JUST A COUPLE SECONDS LEFT,
I WANT TO MENTION OF A SPECIAL
REPORT FOCUSED ON RACE AND

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ETHNICITY AND SOME NONWHITE
POPULATIONS THAT EXPERIENCE
MORE BARRIERS TO DEMENTIA CARE.
ONE BIG TAKE AWAY FROM THAT

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REPORT?
>> I THINK THE BIGGEST TAKE
AWAY IS DISCRIMINATION
HEALTHCARE IS HAVING AN IMPACT

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ON POPULATIONS ACCESS TO
ALZHEIMER AND DEMENTIA CARE AND
OUTCOMES.
THE REPORT WAS REALLY THE FIRST

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OF ITS KIND TO ASSESS AND
DOCUMENT THE IMPACT OF
DISCRIMINATION.
I WOULD ENCOURAGE ANYONE WHO IS

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INTERESTED TO CHECK OUT THOSE